The Onc team is constantly monitoring the progression of my Myeloma. This is a fact of the disease, a part of their normal observation, and an understood aspect of what I am living with (that sounds deeper/heavier than it is). It's an ongoing effort to hold back the inevitable progression of the Myeloma for as long as possible (5, 7, 10+ years - the back end is literally unknown; the medicine and science is that good). So periodically the cocktail is adjusted in response to the slightest uptick in "the numbers" - and leveraging a plethora of treatment options that progress in strength and vary in manageable side effects.
The latest weapon that Dr. S is pulling out of his quiver is daratumumab (Daratumumab is in a class of medications called monoclonal antibodies. It works by helping the body to slow or stop the growth of cancer cells - for anyone following along in their PDR). Worry not dear readers, this is not an experimental nor trial drug, but one with a well-established history, efficacy and pedigree; used widely since its approval 5 years ago. As a matter of fact, none of the many treatment options that I have been offered were/are experimental, though many of them are newly minted within the past 5 years or so. Between the stem cell transplant, chemo regimens that seem to almost focus more on managing side effects, and the myriad maintenance menu, if one were inclined to look for a silver lining, I'd say the timing of my diagnosis was rather fortuitous.
So do I dare take this drug - you're darn tootin’. despite the irony of its name, I'll take this "Dare." And while we're at it, speaking of irony, check out these side effects. We've talked about this before, but I just had to share a couple of real gems from the Dara ISI (Important Safety Information):
Daratumumab injection may cause side effects
- constipation or diarrhea
(so which is it?)
- back or joint pain
- pain in your arms, legs, or chest
- pain, burning, or tingling in the hands or feet
- muscle spasms
(well that pretty much covers the whole body)
- difficulty falling asleep or staying asleep
- tiredness
(that would explain the tiredness)
